Thursday, March 28, 2013

GF journal, August,14 2012


SO MUCH HAS HAPPENED!!!

I’ve been MIA from the wonderful world wide web. It’s been glorious!!!
During your absence from my life, I have had so many landmarks! Life just started happening! Because I’m on vacation and didn’t feel like communicating with more people than I had to for a bit (Think of it as introvert recovery time), I didn’t. There is so much to recount that it’s going to take awhile, and a few different sittings at the computer, as I just found out.  :P

The much anticipated appointment with a neuro-opthomologist in Portland, OR.
It. Was. Awesome.

I’ve been going blind in my left eye for a little over a year now, and it’s been a bit of a problem, as I assume any situation of going blind is. Long story short, no one knows what was causing it and the doctors were just taking guesses as to what could be causing it. Taking me off one medicine then another trying to get the blind spot to stop growing let along disappear. This is what led me to the doctor in Portland that specialized in things like this, and since I was going to visit my brother in Portland I made an appointment. 

I did a different type of vision field than I have been taking every 4 weeks for months on end. This test showed that my blindness didn’t stop suddenly mid-line like all the other tests have shown, which means that it was not mini-strokes that were occurring. My sigh of relief was heard throughout the room I’m sure. 

The doc said there is a possibility of 2 different things going on. Either a blood vessel is pressing on my optic nerve, or my brain is in so much pain and I’m ignoring it, that it’s getting mad and just selectively not seeing to make sure I’m actually paying attention to it. The doc thinks it’s more likely the second one, but I had this weird eye test (an ERG) the next morning (which was a miracle to get on such short notice, thanks God!) that will let me know for sure which option it is. I haven’t heard back on the results yet. 

The treatment for both problems is the same, get the migraines under control. 

That is now my anthem, fix the migraines. I’m allowed back on my Imatrex (PTL!!!!). I’m not eating gluten (which was something he usually recommends to fix migraines). He’s suggesting that I get off of the preventative med I’m on and onto something else that will be more effective and not make me gain the tons of weight that this one did. He also gave me a whole list of things to avoid, supplements to try, stuff like that. I’m really blessed that I got to meet with this doctor and spend 4 hours talking to him (yup, super long appointment but completely worth it!). 

As this school year gears up to start, I’m getting a new lease on life. There is more I can do to help myself in all this pain. I feel empowered to go and do and learn as much as I can about alternative ways for everything and to be on this wonderful crazy diet that is gluten-free. 

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